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Friday, August 08, 2014

Friday, May 23, 2014

A Little Break from CellCept (MMF)

Monday, went to the Rheumy, expected to be 'okay' - hey YIKES, nope.
Looks like my liver enzyme is elevated.

Rheumy thinks it could be some sort of stubborn infection, as my WBC is elevated too - taking me off CellCept for 5 days so that my 'immune' can 'fight' ... plus antibiotics to karate-kick whatever bug messing around.

OR, it could be that my liver are over-worked from all the meds (esp. CellCept that I am taking)

Heck.

Please, please don't mess with my liver. I haven't even settled my kidney issue!!!!!!!!!!!!!!

Good news though, my albumin is up. Hooray!


My easily-bruised leg!!

 

Thursday, March 20, 2014

The "Candies" Before Bed ...



As you can see, my daily 'candies' as I call them.
 
These are the night ones I take before bed. Two powerful purple tablets that suppressed the immune system and the little one with 'heart' is for blood pressure.
 
I am back on CellCept since two months (or so ago..) - My kidney biopsy results showed that I am now Class 4, I've upgraded from the previous Class 3. I am also a Class 5 holder. Class 5? Now, don't be confused,
 
Class 1-4 (I-IV) and 6 (VI) are related, means, the higher the no., higher severity.
While, Class 5 (V) its by its own, membranous lupus nephritis.

  • Class I
  • Minimal mesangial lupus nephritis
  • Class II
  • Mesangial proliferative lupus nephritis
  • Class III
  • Focal lupus nephritisa
  • Class IV
  • Diffuse segmental (IV-S) or global (IV-G) lupus nephritisb
  • Class V
  • Membranous lupus nephritisc
  • Class VI
  • Advanced sclerosing lupus nephritis

Treatment wise, I am back on CellCept, rather than the usual "Cyclophosphamide" treatment for LN. I consider myself "lucky" to get on to CellCept again - as it is the less prescribed treatment due to the cost involved. Being in public healthcare, I can only pray and hope to get the best or better alternative.
 
(Cyclophosphamide is a type of chemo drug, while CellCept is an immunosuppressant)
 
The problem with Cyclophosphamide is that it can cause infertility - permanent, and possible early menopause. Although doctors did explain that the dosage used now is much lower and infertility is more towards the 'male' gender. I was not convinced and ended up getting all emotional (first round) and was given CellCept instead. I responded well on CellCept, went into remission, got pregnant and during pregnancy, the proteinuria, blood all started leaking from my kidneys - prayed a lot during pregnancy and with the The Power of Prayers ...
 
.... talah .... I now have Sophia who loves to pull my hair!!!
 
 
 
That's me, with my moonface features.
Thanks to the 30mg of Prednisolone I take, on top of CellCept on a daily basis.
 
Prednisolone is a type of steroid that suppresses the immune system.
It has many side-effects if taken long term.
I've been on it since 2004!!! YIKESSS!!!!
 
Side Effects? Me? So far, weak bones, easily bruised and mild cataract!
Sometimes, on high dose - elevated BP and MOONFACE plus a camel hump and sometimes, weird craving for food, like now, I've been eating chocolate non-stop. NOT GOOD!
 
I must tame my appetite!!
 
 
P:S: Thank you to all my wonderful bloggie friends who still visits despite the lack of 'action' from me!! Love you all a lot!!
 
 

Thursday, February 27, 2014

Happy Birthday Smelly Butt Butt!!


Time sure flies.
Smelly Butt Butt Sophia turns ONE yesterday!
 
We had a small birthday party on Sunday - a very last-minute-sort-of-do.
Sophia gets her drumstick & red egg, which is symbolic of good food, throughout her life.
 
I wish her good health, happiness, love, wealth and everything good in her life.
 

Tuesday, January 14, 2014

Renal Biopsy 2.0

 
BED 24 !!
 
Year 2010 - Renal Biopsy 1.0
Year 2014 - Renal Biopsy 2.0
 
Coincident?
 
 


http://sillylupie.blogspot.com/2010/02/outta-ward-7b-nephro-kidney-bx-hospital.html
 



Survived my renal biopsy!

Had my renal biopsy late morning yesterday - after much pestering, I am allowed to go home same day, in the evening.

This time, the doc seems to be in a hurry for clinic duties, so, it was a little bit uncomfortable - especially when she was trying to numb the area (injecting very quickly) AND when she took the second sample!!

Ouch ... still having sore back.

Two weeks wait before I get my results ... hopefully they DO NOT lose my precious kidney samples!!!

Did I mention that back in year 2010, I had my biopsy two weeks or so before Chinese New Year?
Looks like it is the same this year! Chinese New Year 2014 falls on 31/1/2014!

Talk about coincident!

P:S:- Thank you bloggie friends for dropping by with encouraging words! Love you lots!!!