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Thursday, March 20, 2014

The "Candies" Before Bed ...



As you can see, my daily 'candies' as I call them.
 
These are the night ones I take before bed. Two powerful purple tablets that suppressed the immune system and the little one with 'heart' is for blood pressure.
 
I am back on CellCept since two months (or so ago..) - My kidney biopsy results showed that I am now Class 4, I've upgraded from the previous Class 3. I am also a Class 5 holder. Class 5? Now, don't be confused,
 
Class 1-4 (I-IV) and 6 (VI) are related, means, the higher the no., higher severity.
While, Class 5 (V) its by its own, membranous lupus nephritis.

  • Class I
  • Minimal mesangial lupus nephritis
  • Class II
  • Mesangial proliferative lupus nephritis
  • Class III
  • Focal lupus nephritisa
  • Class IV
  • Diffuse segmental (IV-S) or global (IV-G) lupus nephritisb
  • Class V
  • Membranous lupus nephritisc
  • Class VI
  • Advanced sclerosing lupus nephritis

Treatment wise, I am back on CellCept, rather than the usual "Cyclophosphamide" treatment for LN. I consider myself "lucky" to get on to CellCept again - as it is the less prescribed treatment due to the cost involved. Being in public healthcare, I can only pray and hope to get the best or better alternative.
 
(Cyclophosphamide is a type of chemo drug, while CellCept is an immunosuppressant)
 
The problem with Cyclophosphamide is that it can cause infertility - permanent, and possible early menopause. Although doctors did explain that the dosage used now is much lower and infertility is more towards the 'male' gender. I was not convinced and ended up getting all emotional (first round) and was given CellCept instead. I responded well on CellCept, went into remission, got pregnant and during pregnancy, the proteinuria, blood all started leaking from my kidneys - prayed a lot during pregnancy and with the The Power of Prayers ...
 
.... talah .... I now have Sophia who loves to pull my hair!!!
 
 
 
That's me, with my moonface features.
Thanks to the 30mg of Prednisolone I take, on top of CellCept on a daily basis.
 
Prednisolone is a type of steroid that suppresses the immune system.
It has many side-effects if taken long term.
I've been on it since 2004!!! YIKESSS!!!!
 
Side Effects? Me? So far, weak bones, easily bruised and mild cataract!
Sometimes, on high dose - elevated BP and MOONFACE plus a camel hump and sometimes, weird craving for food, like now, I've been eating chocolate non-stop. NOT GOOD!
 
I must tame my appetite!!
 
 
P:S: Thank you to all my wonderful bloggie friends who still visits despite the lack of 'action' from me!! Love you all a lot!!
 
 

4 comments:

Hannah and Lucy said...

We were so pleased to see you and Sophia on the CB today - You must have felt our thought waves as I had been thinking about you this week. I must have been taking your medication for you as I am always looking for chocolate! We see Sophia is a chicken face - like Hannah (cat)!!
Take care Bin and will ask Jenn if she's seen your blog today but she is in the middle of buying a new house so is running round like a headless chicken!
Luv Hannah, Lucy and Sue xx xx xx

Old Kitty said...

Awwwww it's so nice to see this pic of you and beautiful Sophia! She is truly a miracle baby and you are truly a most amazing woman, Bin!!

Take care
x

myQza said...

rindu sis lupie.
rindu lagi pada pataya.....

Katie Isabella said...

I am SO glad to see you again. Admiral who has passed away loved Spider Meow and we both love you. Now Mom has me, Katie Isabella.