- 2-T shirts, 2-elastic pants = ok
- Towel = ok
- Disposal Undies = okay
- MP3 player + speaker = okay
- Admission form = okay
- Treatment book + appt cards = okay
- Insurances form = okay
- Identity Card = okay
- Meds = okay
- Previous labs records in file = okay
- Water Bottle = okay
- Minyak CAP Kapak - damn, I need CAP minyak kapak! = pending
- Some Hacks = pending
- Handphone & Charger = okay
- .......
Sunday, January 31, 2010
Checklist ...
Saturday, January 30, 2010
Polydactyl Cat, Roti Canai Stall @ Cherating
Thursday, January 28, 2010
Touched by an Angel ...
Eversince knowing I need to do a kidney biopsy, I've been feeling so alone. As though the whole world just don't care anymore. I put on a brave front when I go to work - I joked about my kidneys. Telling people, it is simple, everything will be okay.
Now, I am covering for a colleague who is hospitalised. I worry for her - but at the same time, I don't know if I should worry for me.
Today, I went to a GP to have my daily BP checked. I told her about the biopsy, as usual I put on my strong fort. I told her my biopsy is on Tuesday and I am afraid of pain, she checked my pressure - 140/90 and as I was about to leave, the sweet, sweet doctor asked if she can pray for me and she held on to my hands, went on and on, with prayers so specific, so touching and I just broke down and cried. I hugged her, again and again.
My fort was already crumbling down, all I had was just some stupid UHU glue to keep it together. I cried, I felt GOD.
All I can say is, GOD couldn't send me an SMS to say he cared, but he sent an Angel instead.
Thank you GOD ... I love you too ...
Wednesday, January 27, 2010
MAFIA WARS - 25% Energy Pack ...
Tuesday, January 26, 2010
Not a good day today at Selayang Hospital ....
Why the fuck she don't read my labs before she start poking, making all these sort of remarks, questions! Oh fuck!
Sunday, January 24, 2010
Reason to joy .... to be happy - another tooth fixed!
Smileshop,
Unit D-13. Ground & Mezzanine Floors,
Plaza Damas, Jalan Sri Hartamas 1,
50480 Kuala Lumpur Malaysia.
TEL :- 03-6201 5003 (call for Anna, the sweet sweet lady!)
http://www.smileshop.com.my/
P:S : At least this dentist knows what lupus is and precautionary measure for tooth extraction!
Dentist ... dentist ... here I come ...
Friday, January 22, 2010
Lupus Nephritis (Lupus glomerulonephritis)
P:S : I really feel like crying ... oh "kuan yim mah" - let me have the strength!
Thursday, January 21, 2010
Dr. M says ..... (!%@#!%#$%$#!%$%#$)
First, he "taruh" OBAMA for not doing more for the middle-east conflict ... oh fuck-off, there are church-arsons behind our backyard and you are more worried about those miles away? How about Haiti, shouldn't that be top priority ...
Man, you are sick! You should just keep your mouth shut and let Malaysian and the world heals herself ... you bad, bad human being ... how can you be so inconsiderate over the those lives lost at 9/11?????? You mean mean old man!
P:S: That's it ... my blood is boiling and pressure will shoot right to the rooftop, with or without UV light!
No Money, Lots of Honey ...
I actually did get some sleep yesterday and woke up a little refreshed (clap..clap...), it could be the Valium doing the work or the fact I didn't get much UV rays yesterday. I am beginning to feel like a sexy, ribena-loving vampire ... muahahhaa ...
Dipstick this morning shows a colour in between +2 and +3 - to worry or not, I don't know. To be honest, I am not feeling "THAT" sick, losing a bit of appetite, food smells awful to me at times - other than that, I feel "OKAY" ... my other half had been pestering me to quit my job like NOW, stop working - but can I? I've still got suppliers to pay!! My cashflow! Management accounts! Withholding taxes! Damn ... how can I quit now? If I tell him, he'll say, "YOU NEVER LEARN LA .. remember twice, hospitalised in Bangkok, still like that ... you don't love yourself!
It makes me wonder how many lupies are able to work full-time? I am trying but it is just so difficult!
Wednesday, January 20, 2010
Okay .... I didn't S.L.E.E.P
Pain is triggered by many things when you have lupus. The main triggers are the weather .. and the sun. Photosensitivity is one of the most aggravating triggers of the disease. It doesn't take much exposure to ensure a reaction of pain.
Lupus patients are very sensitive to UV rays, especially those who suffer from Discoid Lupus. It is a known trigger for a flare! That is why it is so important to wear sunscreen when outside in the sun. But what most people don't realize is, they should be wearing UV protection inside stores as well.
UV rays from the sun can trigger reactions in the skin in the form of a rash, or purple spots under the skin called pupura, but will also cause muscle and joint pain.
People with Lupus must also be aware of "hidden" UV rays as in Fluorescent lighting. If you work in an area with fluorescent lighting, then you should be wearing a sun screen even while working inside the building.
Also .. for those of you who shop at Walmart or Kmart, most grocery stores .. or ANY store that uses the fluorescent light fixtures (long rectangle boxes with long tube-shaped light bulbs) .. please be aware that fluorescent lighting gives off UV rays unless the fixture is fitted with a special lens.
Most fluorescent lighting can be covered with a protective Plexiglas panel that allows light through but not the radiation that triggers the pain. There is a UV protective panel available for fluorescent lighting fixtures but because of cost, it is usually not installed in offices and stores.
A two hour shopping spree in Walmart is equivalent to a full hour in the sun. You don't get sunburned but you do get the full hour of UV rays. Enough to trigger a flare of itching, rashy skin, aching muscles, low grade fever, and/or extreme fatigue.
And you thought the shopping itself was making you ill .. guess again!! It is the lights in the store!
So go prepared .. wear your sunscreen .. use a hat or a scarf .. and even though you may be tired from all the walking, you wont begin a flare that will last for several days.
Computer screens also give off small amounts of UV radiation. Most people are not affected by it, but people with lupus or other photo sensitivities should take precautions. Especially if you are in front of the screen for long periods of time (more than an hour at a time, for days in a row).
The best thing you can purchase to help eliminate the problem is a monitor anti-glare screen that fits over the monitor itself. It knocks down the glare as well as blocks the UV rays. 3M company makes several different kinds.
Limiting yourself to short periods of time in the sun will help eliminate some of the pain, but wearing sunscreen is a must! Sunscreen should be at least 30 SPF, with 45 SPF being a better choice!
********
Also, read :- LUPUS and Light Sensitivity - download brochure at :- http://www.lupusuk.org.uk/factsheets/lightsensitivity.pdf
S.L.E.E.P.Y ...
I can't S.L.E.E.P ...
Saturday, January 16, 2010
144/97 ....
I totally don't get it!
So play, play not, I then took my Vamlo 5!
My BP readings at home were 95% of the times normal! What on earth is going on?
I even brought my brand new OMRON machine for the doc to test, thinking that it is faulty and I would probably need to claim warranty and talah ... it measured 157/99!!!!!
Immedialy after I reached home, I measured again, it was normal?????? Huh?
Am I having White Coat Syndrome? BUT, the both docs I went too don't even have white coats on! OR am I doing something wrong somewhere? Oh bugger! Am I such an idiot?
"White coat hypertension, also known as white coat syndrome, is a phenomenon in which patients exhibit elevated blood pressure in a clinical setting but not in other settings ... "
Read more at :-
http://en.wikipedia.org/wiki/White_coat_hypertension
http://ejournal.afpm.org.my/2008v3n3/EBM_Commentary-white_coat_effect.html
I truly do not want to be over-medicated for reason non-other than being a fool / sucker!
Friday, January 15, 2010
Sumthing funny from work ...
Lupie the Strange ...
Thursday, January 14, 2010
Tired now ...
The Great (or not so great) Prednisolone ...
Guess what? After the prednisolone, my tooth don't hurt so much anymore! (BUT, I am sure it is still rotting away ... like I said, preds just take away the inflammation ...)
Now .... I need a good dentist to do my root canal, any recommendation?
May "pengsan" on the chair during the procedure OR upon seeing the invoice ... so I need a good, affordable dental surgeon to do it! Any recommendation? (Current dentist I am seeing do not do root canal treatment!)
OR any dentist wants to do community service to a soon-to-be-jobless lupie?
I feel good ... la la la la la ....
Tuesday, January 12, 2010
Proteinuria ...
Monday, January 11, 2010
Feeling sick ...
Sunday, January 10, 2010
Dr. M says ....
http://thestar.com.my/news/story.asp?file=/2010/1/10/nation/5444044&sec=nation
".......reiterated his call for a closed-door discussion to resolve the situation following the attacks on four churches in the Klang Valley..."
(Everything also "closed-door", something to hide issit? Rakyat don't have the right to know?)
"... pointed out that using the legal avenue to settle certain matters might not take into account sensitive issues, which could provoke tension."
(So, cannot use legal avenue then use what??? Tell me, use what?)
"So, for the best interest of the nation, we must choose a better approach,"
(U sure or not, best interest of the nation .... sure or not or just ... for the interest of .....)
“Some people might make demands because they are mature but there are those around them who might not be. I think we should not be toeing the line of Western countries on the idea of being liberal”
(So ... are you saying - give in to the morons who likes to play with fire? Then why spend millions and millions of RM sending government sponsored students to western countries?)
Okay, okay Dr. M you are entitled to your "retired" opinions ... so am I ... I dislike your previous admin, you sent so many Ali, Ahmad to U (sometimes overseas) and left Ah Kau and Muthu feel unloved ... like "anak-tiri"!