Wednesday, October 07, 2015

Hello Blog. Hello Friends.

Thank you Hannah & Lucy for the 'knock' to say 'Hello' !! Means a lot! 

Life in between my last post and now has been challenging and tiring.

$$$, Haze, Cough and abandoned kittens!

Oh yes, we found 4 kittens abandoned behind our backyard two months ago.
Funny how they managed to make their way up the steps... perhaps they had 'help'.

My hands are full but couldn't turn away these kittens. 
They were little and needed milk. So to goat milk I turn to.

This means, I have additional four mouths to feed. I better start selling more pillows !!! Oh Bast!

And here's Sophia! (BTW, she calls herself Sasa)! See how terrified kitty is???????!???? 

Sunday, December 14, 2014


School days.

I never liked school days.
Supposed to be the best time of one's life.
Ain't mine.

I hated school, I skipped often, only to stay at home,
No one noticed, anyway.
I am just like invisible.
I can't be invisible.
I'm huge.
Always being called 'names'.
Always being ignored.
Talked to, only because I'm pitiful or someone needed something.

It left a scar.
That can never be erased.

Even now, I still feel being ignored.

Just a couple of weeks ago, an ex-classmate asked if I wanted to buy something, which he can get way cheaper at his place. I said yes, feeling very appreciative.
Then weeks passed, he told me that the 'something' has arrived and he will arrange delivery.
I asked for bank account no,., he said, he'll send first, then only I pay.

I thought tide has changed, I am no longer ignored.

I waited, for 3 weeks, I messaged him - he then said - oh, so sorry I forgot to inform you, out of stock.. I said okay la ... believing him.

One fine day, I logged on to whatapps - and few ex-classmates were thanking him for getting that 'something' for them .... it even traveled miles over to another continent. 

I got upset. He lied. Looks like I am still the pitiful little duck.

Today, I exit the ex-school mate Whatapps group.
Every message I post, no one seems to take notice - probably dun even bother to reply.
Why should I stay, might as well exit.
At least I don't get those irritating notifications.

I should feel good.
I hope so.

Friday, August 08, 2014

Friday, May 23, 2014

A Little Break from CellCept (MMF)

Monday, went to the Rheumy, expected to be 'okay' - hey YIKES, nope.
Looks like my liver enzyme is elevated.

Rheumy thinks it could be some sort of stubborn infection, as my WBC is elevated too - taking me off CellCept for 5 days so that my 'immune' can 'fight' ... plus antibiotics to karate-kick whatever bug messing around.

OR, it could be that my liver are over-worked from all the meds (esp. CellCept that I am taking)


Please, please don't mess with my liver. I haven't even settled my kidney issue!!!!!!!!!!!!!!

Good news though, my albumin is up. Hooray!

My easily-bruised leg!!


Thursday, March 20, 2014

The "Candies" Before Bed ...

As you can see, my daily 'candies' as I call them.
These are the night ones I take before bed. Two powerful purple tablets that suppressed the immune system and the little one with 'heart' is for blood pressure.
I am back on CellCept since two months (or so ago..) - My kidney biopsy results showed that I am now Class 4, I've upgraded from the previous Class 3. I am also a Class 5 holder. Class 5? Now, don't be confused,
Class 1-4 (I-IV) and 6 (VI) are related, means, the higher the no., higher severity.
While, Class 5 (V) its by its own, membranous lupus nephritis.

  • Class I
  • Minimal mesangial lupus nephritis
  • Class II
  • Mesangial proliferative lupus nephritis
  • Class III
  • Focal lupus nephritisa
  • Class IV
  • Diffuse segmental (IV-S) or global (IV-G) lupus nephritisb
  • Class V
  • Membranous lupus nephritisc
  • Class VI
  • Advanced sclerosing lupus nephritis

Treatment wise, I am back on CellCept, rather than the usual "Cyclophosphamide" treatment for LN. I consider myself "lucky" to get on to CellCept again - as it is the less prescribed treatment due to the cost involved. Being in public healthcare, I can only pray and hope to get the best or better alternative.
(Cyclophosphamide is a type of chemo drug, while CellCept is an immunosuppressant)
The problem with Cyclophosphamide is that it can cause infertility - permanent, and possible early menopause. Although doctors did explain that the dosage used now is much lower and infertility is more towards the 'male' gender. I was not convinced and ended up getting all emotional (first round) and was given CellCept instead. I responded well on CellCept, went into remission, got pregnant and during pregnancy, the proteinuria, blood all started leaking from my kidneys - prayed a lot during pregnancy and with the The Power of Prayers ...
.... talah .... I now have Sophia who loves to pull my hair!!!
That's me, with my moonface features.
Thanks to the 30mg of Prednisolone I take, on top of CellCept on a daily basis.
Prednisolone is a type of steroid that suppresses the immune system.
It has many side-effects if taken long term.
I've been on it since 2004!!! YIKESSS!!!!
Side Effects? Me? So far, weak bones, easily bruised and mild cataract!
Sometimes, on high dose - elevated BP and MOONFACE plus a camel hump and sometimes, weird craving for food, like now, I've been eating chocolate non-stop. NOT GOOD!
I must tame my appetite!!
P:S: Thank you to all my wonderful bloggie friends who still visits despite the lack of 'action' from me!! Love you all a lot!!